The Screams

I think this is one of the toughest parts to look back on and write about. But, I think to properly tell our story its necessary.   A child cannot go through 12 months of colic and the agony of itchy eczema without developing some learned behavior. My daughter Adalyn inherited my high pitch scream without a doubt. I was once told that Andrew gets his high pitch scream from mimicking his sister.   We never were able to properly sleep train Andrew and his scream was like a fire alarm that sent us in a tale spin at night. I always felt he was in pain so I absolutely coddled him and I don’t regret that. He always had a very demanding cry. If you mix demanding and high pitched you get a terridactile banshee scream that could send anyone over the edge. I am thankful to God that I didn’t go over the edge a time or two. When Andrew was a baby and would scream in pain it wasn’t the volume or the demand in his cry but the sheer pain I heard in his cry that hurt my heart.   I could handle the volume but I had a hard time with what was hurting him so much. His constant cry was more of a reminder that I couldn’t help him or that even if I was trying to provide comfort it didn’t help. It was hard to say the very least. It was the toughest time of my life. There were times Andrew would scream in pain and arch his back when trying to put him to sleep. He wouldn’t let me rock him, sing to him or read him books, He screamed at every bath, at every diaper change, at everything.   He met all the symptoms of what is described as a “high needs baby”.

When he didn’t hurt, he was an angel and the most precious little boy on earth. He was the most beautiful and special little boy I have ever seen and I deeply loved him with all of my heart.

I didn’t trust anyone with him. I knew how hard it was sometimes for me as his mother to handle it. I was afraid how someone else that didn’t have that motherly love for him would handle him. I was ok to have my husband or mother help me with breaks but I wasn’t comfortable with much else and I wasn’t comfortable for long periods. I remember on several occasions’ doctors asking me how I was coping. I would always tell them I could handle it while they suggested I needed to get some rest.

I didn’t go back to work, even part time like I had anticipated. I was so scared to. I was so concerned about putting him in daycare and how someone could handle him and other children at the same time when he was having an episode. I wouldn’t have considered having a nanny because I wouldn’t have trusted someone alone with him.

It didn’t help the comments I would get from people. I remember walking Andrew in the stroller and having neighbors comment to me on how loud he was. How they could hear him yelling when they would take their dogs out at night and how they couldn’t believe how loud he was. If I was able to get enough courage to go out in public I was quickly discouraged by the looks of onlookers around me. There were times I had to go to Target or the grocery store and I was always shocked by the judgment of others. I have had people say to me, “Gee you really have your hands full.” I overheard one lady say, “Man, what is wrong with her son!” One lady at checkout one time said to me, “Has he just never heard “no” before?” The best was when one time Andrew was in a good mood and just wanted another cracker at the store. A man walked by me and said, “Man, what is wrong with your son? Tough time of day?” I replied, “No, he just wants another cracker. He is actually having a good day. “   Andrew was actually in a good mood that trip, he was just excited and is just THAT loud. That man came back later during my shopping trip and apologized to me for his comment earlier. I just smiled and said, “No problem, happens all the time.”

We saw a huge change in Andrew after his tongue-tie surgery and his reflux and constipation issues resolved. He did however keep some of his learned behavior. We were prepared for that and were told it would take about a year to grow out of it because that’s how long he went through it. Turning 2 with this type of scream was no picnic. There were often times that if Andrew did have a meltdown in the car over something I would literally have to pull the car over to the side of the road until I could get him to calm down. It was just too distracting.

I had difficulty taking him to certain places. There were places I would go and if something set him off I would have to pick him up screaming and carry him out. There were places I would not be able to show my face at for at least a few months in hopes they would forget about me. One time at the library check out Andrew threw such a fit 2 librarians ran to me so fast to help me at the self check out to get us the heck out of there.

I would try time and time again to take my kiddos to story times in the various cities libraries nearby. I would often switch up which session we attended and which library. I didn’t want to be recognized. There were so many times I had to carry Andrew out screaming. Our favorite library had a train table. We would have the best time ever at that library and could spend the entire morning there. When it came time to leave no matter how much I prepared Andrew he would scream from the train table to the car in sheer hysterics. I remember one time carrying him out and having people standing up from their computers to see the scene we were making… Awesome… I liked that library so much I bought trains to bring with us to try to get him to hold those as we walked out. No dice. Just screams. I haven’t showed my face back there for a long time. I have learned libraries are really not a good place for us. I just wanted to do “normal” things with my kids and Adalyn loved the library. On the rare occasion we go now we attend the toddler story time where everyone is loud. I generally can’t take Andrew to the Preschool one for Adalyn. I usually get about 5 minutes into class when the teacher gives a friendly reminder that if your child is disruptive you can kindly take him out until he calms down.

We greatly enjoy going to the zoo and even the aquarium. We usually do great at those places. The aquarium works so long as we don’t stop at the café upstairs for a snack after. There is a car game there. The last time I tried to take Andrew from the car game I had to carry him in hysterics down the high flight of stairs and people literally walked out of the aquarium to see the scene that we were making. I always feel like we are a spectacle and I absolutely hate that feeling of judgment more than anything.

About two months ago I discovered Chik-fil-A. Where has that been the past two years? How did I not know about this? There are two about 20 minutes in either direction from me. They are very clean, have an almost soundproof play area with a door and I don’t have to feel guilty about feeding my kiddos the food! I am now meeting friends with kiddos for play dates there. Heck, I don’t even have to clean my house! So yes, I think Chik-fil-A is the best place ever! I have yet to try mom’s valet but I hear that is pretty great too! If you go through the drive thru you can order your food and they will have it at your table waiting for you when you get inside. Again, best place ever invented for parents with small kiddos! Last time, I was there they came around with free cookies!

For anyone reading this I want you to take away one thing from our story. If you see a parent in public dealing with a meltdown kindly do one of the following.

  • Smile at the mom and give her a head nod. The, “I have been there and so I know what you are going through head nod.” Hell, you could even offer to help her if the situation is bad enough.
  • Do not give that mom any looks. She already feels like the worst mom ever in that moment and does not need your extra judgment. She is hard enough on herself.
  • If nothing else, please mind your own business and do not stare at them. Go on about your shopping trip. Move Along. There is nothing to see here.

I one time had a meltdown so bad that I had a mom casually follow behind me and said, “I am right behind you if you need help.” She followed me all the way to my car and sat on a bench behind me until I got things under control. While at the time it felt a bit odd, I know what she was doing. She knew what I was going through. She wanted to help. What an angel. I have actually done it for other moms. I saw a mom one time at the dentist unable to physically get her child in the car over a meltdown. She looked exhausted and beyond frustrated. I actually went over to help her once I got my kids buckled in. I helped her calm her child down just enough that she was able to get them buckled. Was it my place? I don’t know. But, I have been in that moment and I know how hard it really is.

As Andrew has hit 2 ½ he is starting to get much better. He is understanding what it means when momma puts her finger in front of her mouth and says “Shh.” He will mimic it back. He is also accepting bribery much better now. Sometimes I bribe him to get in the car by offering a reward or cookie. Don’t tell my husband that. Before going anywhere I always have a conversation with Andrew that if we go inside you have to be a good boy and no screaming. He actually says, “Ok momma”. The best thing that is helping us are tips that I got from a book, “Happiest Toddler on the Block.” By Harvey Karp, MD. One of my husbands co-workers got this for my for Christmas. I have to say it is one of the best parenting books I have ever read. Using tips from this book got me through a meltdown at the start of our Target trip this week and led to a trip that was completed happily with diapers and food pouches rather than me leaving empty handed.

I also have been using what I call the “Screaming Station”. If Andrew has a fit I open up the pack n play and set him in there until he calms down. When he has a meltdown wherever we are I say, “I am going to put you in the Screaming Station.” This sometimes works to. After he is in the Screaming Station I check on him every few minutes and ask, “Are you done screaming?” When he is done, he will finally say, “Yes.” That’s when he comes out.

I recently read an article that talked about in the midst of a public tantrum to remain calm. That others are not judging your child they are judging your reaction. While I absolutely agree with that I also find this to be incredibly sad. It is sad that we judge mothers so harsh in the first place. You have absolutely no idea what that family is going through or has been through. You have no idea when that mother slept last or showered for that matter. Please give her a break on your judgment. Your day may come when you are in that same situation. You may have already been there. Please think back and remember how tough it is. Motherhood is tough & amazing all at the same time but there are no doubt very hard momma minutes.

I was helping my children wash their hands in the Chik-fil-A bathroom the other day and a lady walked by and said, “Oh, I don’t miss those days.” That makes me so sad to hear that. I will miss these days. Hard ones included. My lil sweet peas will only be this young for so long. I am enjoying this time. Even if it’s loud. Even if it’s hard. Even if they scream. So please, don’t judge if you see us. Just look the other way or smile and give me a head nod. Say, “Oh, momma, I have been there!” And smile… but please no looks or judgmental comments.

 

 

 

 

 

 

 

The Bills

The file. It is something I have dreaded going through for a while. The large manila envelope is such a large heap that I had to keep it in a box. It is marked “Paid / To File”. I had thrown all of the doctor bills in this file. Every bill is another reminder of each trip to each new specialist. Each time I had to tell again, “our story”. Each time I would wonder if this was it. Each time I would stress out leading up to the appointment over the possible outcomes. Each time they told me “I don’t think I am the right one to help”. As I pulled this file out tonight to finally sort through I got an awful feeling in the pit of my stomach. Had I really dreaded this file this long? I guess I really didn’t realize I had this much pent up frustration over what I had been through. As I sorted I was reminded of each time I paid each bill and how I stressed over every payment. How I would check the HSA account each time to see how much we had left. How I dreaded telling my husband each time another bill came. How so many times I wouldn’t tell my husband bills would come and I would just take the money from my savings. This was the first time in my life I wasn’t working. The first time in my adult life, in our marriage that all the financial responsibility and healthcare lay fully on his shoulders. How I knew that no matter how awful it was each time I paid another bill that I would still keep searching for answers and call another specialist. There were times I believed my husband thought I was losing my mind but in reality I was just desperate for relief for my son.  I just felt utterly helpless.  I knew how much stress it was putting on my husband and our marriage. The financial burdens that come along with searching for healthcare answers are excruciatingly painful. I think at one point my husband calculated that we had spent $20,000 on Andrew’s healthcare in his first year. As I continue to sort through these bills, I am reminded of the times that I thought that I didn’t care how crazy my husband thought I was, I was going to keep searching. I was going to figure out what was hurting my son. For every bill I see tonight, it is a reminder that I sometimes do not believe our marriage survived that year.  Every time I would tell my husband of a new allergy test or holistic doctor that was going to help his reply was always, “what is this going to cost?” It was never that he didn’t care but he knew how much it all added up. Tomorrow my husband and I are celebrating the 10-year anniversary of our first date.   As I finish up for the night, I am so thankful to still have a strong marriage. I know in my heart that if we made it through all that we did that year we can make it through anything. I am so thankful that my husband stood beside me through it all and he loved me even on the toughest of days.  I am also so very grateful for all the tests that came back negative.  How I know things could have been so much worse.  I am thankful Andrew is a healthy and happy little boy.  It was the time of the unknown diagnosis that was the toughest and I am thankful to have had my partner along by my side, I love you husband.

Car Puke

(This one is for the mommas who understand Reflux)

When you have a child that cries bloody murder almost every car ride for almost 12 months you really never truly get used to it. Other moms I have come in contact with that have been through this all say the same thing. You avoid going anywhere you don’t have to. Sometimes, it’s easier to be a hermit. But, you can’t avoid doctor’s appointments and other necessary things. You learn to clump all errands together because you want to limit your time in the car as much as possible. On the day that my son went downtown to see the Endocrinologist is a morning I will never forget. We got stuck in traffic and it took 55 minutes to get there. My son screamed the whole drive. The things I yelled at other drivers were ugly to say the least. I never thought I would have survived that ride. When we arrived downtown it was pouring rain. I grabbed my son so fast from his seat to relieve him. Hearing his pain cry hurts my heart in a way nothing else can. His reflux is horrible in the car. I hadn’t noticed he vomited so bad that now that I was holding him we were both covered in vomit. We were already 5 minutes late for the appointment that I just went with it and ran inside. We were covered in vomit as I am wiping him and getting in the elevator to the 12th floor. There had to have been somewhere in the ballpark of 10-12 people on that ride up. As soon as I walked on I looked at all their faces. I fessed up right away to my fellow riders and said. “Hey, I am sorry. My son threw up on the ride down. That is why we smell. He puked”. It was the ride of shame that stopped on every floor up. I was so grateful to arrive at that appointment and to the nice nurses that helped get us cleaned up. It wasn’t until a few weeks later when we went to the fire station to get his cars seat checked, that I realized how much he truly threw up that day. When the fireman removed the seat there was thick vomit coating that I literally had to scrub, peal and pry off the leather seat. While I was extremely embarrassed in that elevator ride and in front of that fireman, it was just life at that time. Only some people truly will read this and know what it is like to truly experience reflux car rides. The second my son was able to get out of his infant carrier helped the reflux a bit but the screaming car rides continued on for quite some time.

20/20

Hindsight is 20/20. I have heard people use this saying in the past but I guess I never thought much of it. I finally get what it truly means. It is amazing that when you are going through something like we have the past 11 months and you are so overwhelmed, exhausted and just plain spent you can’t see the big picture. When I look back I think why didn’t I just do this or that. There are so many “why didn’t I know this” and “why didn’t I think of that”. Things that look so obvious now were not even considerations then. I just wasn’t in the know. I hope I can be someone’s hindsight. If writing this gives just one person a clear vision up front and they don’t have to endure what we did, than it was all worth it to put this down.

Today was a good day. My son only got up one time last night. He was pretty happy today with minimum fits of bloody murder cries and he actually took a nap. I showered today. I usually tell myself if I can shower, empty the dishwasher and do a load of laundry then my day was not a total loss. I actually consider this productive. It’s exhausting to go back and forth between good days and bad. While I am not complaining to have a good day… it’s the rough days that really get me. I think it is because I know how good a day can be and that it is possible for my son to have them.

Yesterday, well let’s just say it was a bad day. Last night I stared at myself in the mirror before bed. I didn’t recognize the woman I saw staring back. I just look defeated. It wasn’t that I took my daughter to school, then Andrew to the doctor, then my dog to the vet, then rushed home to clean my house for a house showing then back out to get Ady from school, then home to play with the kids, then final clean before showing and finally out of the house for the showing. I can handle the craziness of life. It’s the fact that I think Andrew screamed through most of the day. He was having a “bad day”. While at this point it could be reflux, gas, his constipation, inability to tolerate food or his irritability from lack of sleep. Whatever the culprit today. It was a bad day. It makes it all the more tough when you have a loaded day to survive. That’s what I feel I do anymore. I survive. And when at the end of the day I look in the mirror on a day like today. I don’t look at myself and say “good job!” I think, wow, you really sucked today. Think of all the times you lost your patience. You really look like hell. Man you have aged. How can my husband possibly find me attractive? These things race through my mind, along with many others. Sometimes I need a vacation from mind. I am just drained in ways I have never felt depleted before.

When lil ones finally fall asleep in the car

So what happens when your lil one actually goes to sleep in the car you ask? Well, let me tell you! When this special time happens it is amazing! When my dear baby boy goes to sleep in the car.. I drive. I drive to give him a nap and momma a break. The other day I had to run his 7 Quarts of leftover Goats Milk that he couldn’t tolerate to the Food Bank. Andrew fell asleep on the drive down.  By the time I was on my way home I seriously had to pee.  I was not in a good area of town and I never wake my sweetie to get out of the car to pee. That would be unthinkable. That would mean he would scream for the remainder of the trip.  So I hold it. As I drove through downtown I contemplated grabbing the diaper hanging out of my diaper bag on the seat next to me. I literally thought about placing it in my pants and peeing. As I looked around me there were trucks everywhere. I could never get away without someone seeing me. I literally couldn’t believe that I really was this serious about this. Then I thought, how bad would it be if I just peed? Then I thought, how would that affect my heated seats? Would the pee seep inside and it smell each time I turned on my butt warmer? No good. What would my husband think if I told him I peed in the car? So now I was 5 minutes outside of the city. I ended up caving and stopping at a McD’s. I didn’t pee my pants but I did have to hear my poor lil man cry the rest of the drive home.  I should have just peed my pants.

Dating Adalyn

Tonight I took Adalyn for a date night. I will never know how much Andrew’s colic has truly affected Ady. When you are one on one with Ady she is the most delightful and intelligent little girl. She can light up my world. I struggled terribly going back to work when she was a baby. I wanted to spend every second of the day with her. I think the hardest thing of all of this is that now that I have the ability to stay home full time the fact that I still don’t get to have Ady home full time with me. Ady by nature is a very smart girl and needs to have constant activity and attention. It was very hard for her to go from being at school full time to cutting back and staying home with me full time. I decided to keep her in daycare part time 3 days a week to help her with the transition. I feel so guilty when she is at school and I am at home with Andrew. The days she is at home she is so restless. I can fill the day with endless activities but she still seems like she is missing something. Ady acts up a lot around Andrew. I think between his screaming and the demand he has put on his parents and the attention he has taken from her has really affected Ady. I will never know to what extent. I have tried so hard to do what I can to help her through this as much as I can. When I see that she is really having a rough time, I try to do Momma/ Ady nights. I don’t know who enjoys them more to be quite honest.

Tonight I took Adalyn for a date night. I took her first to TJMaxx. I had a return. I took her back to the kid’s section and let her pick out something. Anything she wanted. Of course she went for the books. She loves books. She is 3 and a half and loves to look at the pictures and tell you the story. Ady picked out a book for herself and then we picked one out for her brother. When it is just the two of us Ady listens so well and I believe its because she has my undivided attention. We then headed to dinner at a pizza/pasta joint called Danny Boys. We crawled into the booth and ordered penne pasta and pizza. As we waited for our food we read Ady’s new Halloween book she picked out. We giggled as we read. As we ate we giggled. I enjoyed Ady like I have not had the chance to do in so long. We just giggled. We giggled through our Pasta, through our Pizza and then through our ice cream. I could not even tell you what we laughed about. We just giggled. I feel like Ady and I just get each other. We can be so silly and I think that is what she longs for from me. I think the days I get consumed with Andrew she just misses the silliness. We share such a special bond and I will never know how much I have hurt her feelings by being so consumed with Andrew. I will make it a point to continue to date her. Through all of this, I will make it a priority to take time out to enjoy her. This night was the most enjoyable night I have had in so long. I think its nights like these that Ady and I both need. She brings so much joy to my world.